Helping kids understand ALS

ALS is a neurodegenerative disorder in which people slowly lose the ability to walk, talk, and breathe. There is no known cure. Having a parent with this diagnosis when you're a kid or a tween is confusing and scary. The ALS Association and behavioral health researchers at the University of Wisconsin created two guides to help two key age groups (kids under 9 and tweens) understand and assist their parent living with ALS. I led a team to bring these two guides to life in relatable formats.
While the researchers and the ALS Association knew what to say, they did not know how much information kids under nine would retain, how much information they could be presented with, or if their proposed graphic novel format would be successful. In order to test these assumptions, the tone, and reader comprehension, we developed a short survey that allowed us to find the right cover, address the tone of sensitive matters correctly, and get our message across with the right amount of content. This was finally adapted into a 30-page comic along with illustrations that were inspired by popular kids' graphic novels.
QPP dashboard
QPP reporting dashboard
ALDF case page
When you're just about to become a teenager, you're exploring autonomy and the researchers wanted to capitalize on this. For the second guide, we developed a choose your own adventure format in print and digital that allowed tweens to look through the lenses of three relatable characters and discover more about ALS.
ALDF case page